Tuesday, May 29, 2012

Dr Watkins at Stony Brook


What a difference a week makes! Or....what is reality?

Last Monday at our Sloan consult Laurie was told that it seemed there was still active cancer in the innermost part of her tumor. She proceeded to go home and vomit up blood, be taken by ambulance to NY Hospital with an upper g.i. bleed, and come home after 4 days to spend the long holiday weekend zonked out cycling through pain/nausea meds and sleep with no energy and a crushed spirit.

Today the roller coaster zoomed right up. We met with Dr. Watkins, the surgeon who operated on Laurie with the nanoknife in Stony Brook. His take is that the pain and suffering Laurie has been experiencing currently and since the operation on 4/4 is post surgical and not cancer. He saw no evidence of the spread of cancer and, in fact, he believes the entire tumor is dying spontaneously---liquefying and draining off and creating an air caviity---thus causing Laurie's pain and digestive issues. Although it is possible that this could naturally resolve, Dr. Watkins prescribed an anti-biotic and will also probably schedule an endoscopic ultrasound in a couple of weeks to check on the air cavity and attend to it further then if needed.

Coincidentally, Laurie's energy seems to have come back at least slightly today, too. Upon arriving back into Manhattan, she insisted I drop her off rather than drive her to do an errand. After spending the last few weeks either in the hospital attached to i.v.s or curled up in bed in pain or asleep with torturous  food network t.v. shows (my opinion) persistently playing in the background, her insistence on being dropped off showed shades of the Laurie we all know and (some of us) love.

Of course it is only one day and one MD's opinion (Whoever said medicine was an exact science?), but in the path Laurie has chosen, his voice and opinion are important, and let's hope he is in fact right!
As always, thanks for all the caring and support of all of you out there. It continues to mean so much.

with love, 
Neal

Friday, May 4, 2012

Pain Management

Hi all,
After another very uncomfortable day for Laurie in which she seriously considered returning to the Sloan ER because of her pain level and not being sure of the cause, we spoke with Dr. Watkins, the Stonybrook surgeon who did the nanoknife procedure on her almost exactly one month ago. Dr. Watkins had reviewed all of her latest info (including CT scans from earlier this week) and did not see evidence of tumor or cancer related causes to her current pain. Rather, he suggested that it was her body still recovering from the surgery and that she needed to "get over the hump" and made a few suggestions to tweak her current pain med approach as well as a couple of simple exercises for her to do. He also recommended that if she wasn't feeling better in a week that it might be a good idea to consult a pain management expert.
Thus ended another trying week, but with good news --- at least for me. For Laurie, the best news at the moment would be to start to feel more comfortable and less in pain. Let's hope that isn't too too far around the corner.
love---Neal